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Notes on Chronic Fatigue Syndrome Prepared by Raymond E. Zegebroks

Mr Zegebroks is the father and carer of his daughter who suffers from ME/CFS and Fibromyalgia. His dedication to trying to find ways of helping his daughter improve and eventually recover from her extremely debilitating condition, has led him over many years to investigate some aspects of biology, microbiology and molecular biology as well as some of the research into ME/CFS, and has resulted in an initial draft of his findings entitled “Notes on Chronic Fatigue Syndrome”.

SEEKING "FEATURED MEMBERS"

What is it like to live with ME/CFS? How hard was it to get an accurate diagnosis? When did it start and how has it affected your life? What tips can you offer to others who may be looking for help / hope? These are the kind of stories we are looking to gather to share with other readers.

25th BIRTHDAY CELEBRATION!

Come one, come all to the ME/Chronic Fatigue Syndrome Society of NSW Inc.'s 25th Birthday!

October 2006 is our 25th year of operation and we are celebrating! There is something for everyone to get involved in including a party day, an art & crafts competition, a writing competition, and a doctor and patient seminar with respected ME/CFS specialist, Dr Richard Schloeffel.

Get involved! Learn about ME/CFS and ask all those pressing questions! Join in the party fun!

Community Support Forum

Our Community Support Forum is growing into a wonderful interactive resource for members and the general public alike.

It is designed to provide information and support for those with ME/CFS, FM and other related illnesses, and to provide a friendly and understanding place to chill out for those that like to chat. It even has an area for friends and carers to discuss the day-to-day things and get some helpful advice from others in the same situation.

CLICK HERE TO GO TO THE FORUMS!

Want to send a message to the management committee?

Help direct ME/CFS Australia's future

In October 2009, ME/CFS Australia convened a summit in Canberra where it made a number of positive decisions related to its future.

ME/CFS Australia wishes to establish its operations so that it can deliver Nationally-focused programs that will improve the wellbeing of Australians affected by ME/CFS. Before we get ahead of ourselves, we must engage with the Australian ME/CFS Community to test our ideas for support and to assess the feasibility of expansion. We have established a Blog as a means of connecting with everyone with an interest in ME/CFS. http://mecfsaustralia.wordpress.com/

If there are any people in the Australian Capital Territory eager to be involved in Advocacy work, please contact me.
Cheers, Paul Leverenz
ME/CFS Australia
mecfs@mecfs.org.au

NEW SUPPORT GROUP TO BE ESTABLISHED IN ROOTY HILL

Please contact the Society tel: (02) 9904 8433, or email: mesoc@zip.com.au to register your interest.

Volunteers

Volunteering not only provides the Society with valuable skills but allows people who are testing the waters in regard to coping with work an opportunity to become involved. We have several projects that will need volunteers to help us through and if you would like to be involved, we urge you to contact us to discuss where you can be of help.
You can contact the office via our contact page or email mesoc@zip.com.au

The Rainbow Room at Chatswood - Pamper yourself

The Rainbow Room would like to extend their services to people living with ME / CFS. The Rainbow Room based in Chatswood offers pampering (foot soak / massage / facial / hair treatment and style + morning tea) at no cost to you.
Open Wednesday's please contact Jane on 0407 918 689 or email rainbowroom@nscc.org.au or visit www.nscc.org.au. Click on church, then community services to find information on the Rainbow Room.

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